Still haven't got...

... any exact time for the surgery. When I called the hospital last week the co-ordinator hadn't made any progress yet in the planning. So, I am waiting for the phone to call... this waiting is like hell!

ZenMaster

Stopped taking the medication...

This Monday, I stopped taking the medication for the pituitary tumour. It was the fifth attempt! I already feel much better, not so tired and no ache left in my legs anymore.

I also had a new appointment with the neurosurgeon, and he again is prepared to perform the operation instead. But it is a sensitive procedure, especially how my tumour is situated; he is not sure he will reach it the usual way. And since it is the third time he have planned for surgery, I am not sure he will do it until it is done! Backing off a couple of day's before the operation is planned is extremely emotional draining.

So, I just have to wait and see what happens next.

ZenMaster

One Reality with CFS...

One reality with CFS is that there will be long breaks when you don't have energy or strength to do anything...

That is the reason for no post for a long time!

ZenMaster